Event Detail

WIB-SoCal "Rare Disease Part 3: Balancing Genetics and Ethics in the Management of Rare Diseases"

From 5:00 PM TO 8:30 PM
Advances in precision and personalized medicine hold promise for the diagnosis and treatment of rare diseases. However with these advances come the challenges of balancing personal information and protecting individuals using these technologies and participating in clinical research. Attendees to this event will learn about changes in regulatory oversight, new ways and new models to accelerate moving new therapies forward with smaller populations, how to empower families to drive health, wellness, and knowledge, and what ethical hurdles exist pertaining to information provided to the patient and family. We will also hear from a young high school student, living with a rare disease, on how she views the option of genetic testing.

The evening will be moderated by 
Linda StrausePhDPrincipal and Founder of Strategic Clinical Consultants

Our panel features the following individuals:

  • Barbara Binzak Blumenfeld, Shareholder in the Washington, DC food and drug law practice group at Buchanan Ingersoll & Rooney
  • Razelle Kurzrock, Director, Center for Personalized Cancer Therapy at University of California, San Diego Moores Cancer Center
  • Dawn Barry, Vice President of Applied Genomics at Illumina, where she leads market development and expansion strategies for early stage clinical, research, and industrial applications of genomics
  • Sophia Galdámez, High School Student-Athlete, Patient Advocate, 16 years of age and a sophomore at Francis Parker High School

Learn more about our speakers.

Walk-Ins Accepted?
* - Walk-ins will be accepted at the door until event capacity is reached.


5:00 p.m. – 6:30 p.m.

Check-in and networking

6:30 p.m. – 8:00 p.m.

Panel presentation and Questions & Answers

8:00 p.m. – 8:30 p.m.


Pricing Information
Members: $15
Non-Members: $45

Special Pricing for Guests
When registering, members are also allowed 1 guest at member pricing

Event Date/Time
Thursday, April 20, 2017
5:00 p.m. – 8:30 p.m. PST

Parking Information
Free parking at Illumina campus

Maximum Capacity

Illumina Inc. - Fitness Room, 5200 Illumina Way San Diego, CA, 92122