Event Detail

WIB-So Cal "When Value and Novelty are Required:Transformation of R&D in the Orphan Disease Space"

From 6:00 PM TO 8:00 PM

Join us for a presentation by Dr. deMauri Mackie, Fellow in Clinical Research Methodology, and Michael F. Murphy, M.D., Ph.D., with Worldwide Clinical Trials. During the presentation, our speakers will discuss historical precedents for how orphan disease research is conducted, who the key stakeholders can be in the process, and the need to consider multiple perspectives (patient, family, pharma/biotech company, and payer). They also will consider how to adjudicate conflicting interests when both value and novelty must be demonstrated, and how to “step outside the box” while remaining pragmatic in the design of clinical trials and post-approval research activities.

Learn more about our speakers.

Walk-Ins Accepted?
* - Walk-ins will be accepted at the door until event capacity is reached.


6:00 p.m. – 6:30 p.m.

Check-in and Networking

6:30 p.m. – 7:15 p.m.

Panel Presentation

7:15 p.m. – 8:00 p.m.

Q&A and Networking

Pricing Information
Members: $15
Non-Members: $45

Special Pricing for Guests
When registering, members are also allowed 1 guest at member pricing

Event Date/Time
Thursday, May 18, 2017
6:00 p.m. – 8:00 p.m. PST

Parking Information
Parking available within the The Lodge

Maximum Capacity

The Lodge at Torrey Pines, 11480 N Torrey Pines Rd La Jolla, CA, 92037